Resources that support Alzheimer's and Caregiving
Here are a few helpful resources for caregivers of people with Alzheimer’s. Each of these organizations has comprehensive resource lists that are easily found.
Alzheimer’s Association
The Alzheimer’s Association provides support and research related to Alzheimer’s disease. It provides a wealth of information for the caregiver including information about Alzheimer’s, behavior and stages of the illness, how to stay healthy, how best to support someone with Alzheimer’s and dealing with finances.
www.alz.org/help-support/caregiving
The ALZConnected section of the Alzheimer’s Organization supports the Alzheimer’s community including those living with Alzheimer’s and caregivers. It provides message boards for topics of interest and solution pages where the caregiver can ask a question of concern and receive or offer solutions to that question.
CareGiving.com
CareGiving.com is an online presence that supports the community of caregivers through blogs, podcasts, video chats, free webinars, and training. This site gives voice to the caregiver and provides a comprehensive resource directory.
AARP
AARP devotes part of their website to caregiving. They include helpful information about medical, financial, life-balance and community topics. They also provide ways to search for resources and solutions in local areas through a search feature.
Alzheimer’s Reading Room
The Alzheimer’s reading room is a popular Alzheimer’s blog written and hosted by Bob DeMarco, who tracks the latest developments in this disease. It is a favorite resource for many caregivers of people who have Alzheimer’s.
facebook.com/alzheimersreadingroom/
A Place for Mom
“A Place for Mom” provides advice in matching your loved ones with appropriate senior care options. This site offers a document called “The Big List of Alzheimer’s Resources,” which is a comprehensive resource list related to Alzheimer’s research, caregiver support, therapies, books, videos, prevention, and more.
www.aplaceformom.com/blog/list-of-alzheimers-resources-3-06-2013/
Family Caregiver Alliance─National Center on Caregiving
Family Caregiver Alliance (FCA) provides research, services, advocacy, and education in order to improve the quality of life for caregivers and provides assistance in the development of programs for caregivers. FCA offers information on current social, public policy, and caregiving issues in coordination with the National Center on Caregiving
Teepa Snow
Teepa Snow is a leading educator on dementia education and care. She is the founder of the Positive Approach to Care (PAC), a company that offers training, services, and products and that focuses on the relationship with the dementia patient based on the values of empowerment, authenticity, compassion, and curiosity. She is known for seeing “the gems”, or uniqueness and specialness in our loved ones at each stage of the Alzheimer’s progression. Her training is offered both in person and online. Her videos provide a wealth of guidance for the caregiver and models positive ways to interact with people with dementia.
teepasnow.com
BOOKS THAT SUPPORT CAREGIVER'S JOURNEY THROUGH ALZHEIMER'S
Jolene Brackey, Creating Moments of Joy Along the Alzheimer's Journey: A Guide for Families and Caregivers.
Barbra Cohn, Calmer Waters: The Caregiver’s Journey through Alzheimer’s and Dementia.
Eric Ellena and Berna Huebner, I Remember Better When I Paint, Documentary, www.irememberbetterwhenipaint.com.
Lisa Genova, Still Alice.
Earl A. Grollman and Kenneth S. Kosik, When Someone you Love has Alzheimer's: The Caregiver’s Journey.
Leslie Gerber, Losing Tara: An Alzheimer’s Journey.
Olivia Ames Hoblitzelle, Ten Thousand Joys & Ten Thousand Sorrows: A Couple’s Journey through Alzheimer’s.
Beth Witrogen McLeod, Caregiving: The Spiritual Journey of Love, Loss, and Renewal.
Teepa Snow, Dementia Caregiver Guide.
Mary Sue Wilkinson, Songs you Know by Heart: A Simple Guide for Using Music in Dementia Care. (Tradepaper and CD)
Books that Inspire consciousness
Mitch Albom, Tuesdays with Morrie.
Angeles Arrien, The Second Half of Life: Opening the Eight Gates of Wisdom. ——— Living in Gratitude: A Journey That Will Change Your Life.
Tara Brach, Radical Compassion:
Learning to Love Yourself and Your World with the Practice of RAIN. Mirabai Bush,
Contemplation Nation: How Ancient Practices are Changing the Way We Live.
Jimmy Carter, The Virtues of Aging.
Joan Chittister, The Gift of Years: Growing Older Gracefully. Elise Dirlam Ching and Kaleo Ching, The Creative Art of Living, Dying, and Renewal.
Pema Chödrön, When Things Fall Apart: Heart Advice for Difficult Times. ——— Welcoming the Unwelcome: Wholehearted Living in a Broken Hearted World.
Deepak Chopra and Marilyn Schlitz, Ph.D., Death Makes Life Possible (Video).
Ram Dass, Be Here Now. —— Still Here: Embracing Aging, Changing, and Dying.
Neil Douglas-Klotz, Kahlil Gibran’s Little Book of Love.
Carolyn Fay, At the Threshold: A Journey to the Sacred Through the Integration of Jungian Psychology and the Expressive Arts (DVD), junghouston.org/bookstore/?category=media.
Kahlil Gibran, The Prophet. Joan Halifax, Standing at the Edge: Finding Freedom Where Fear and Courage Meet. ——— Being with Dying: Cultivating Compassion and Fearlessness in the Presence of Death.
Jack Kornfield, A Lamp in the Darkness: Illuminating the Path Through Difficult Times. ——— A Path with Heart: A Guide Through the Perils and Promises of Spiritual Life.
Elizabeth Lesser, Broken Open, How Difficult Times Can Help Us Grow. ——— Marrow: Love, Loss, and What Matters Most.
Martin Lowenthal, Buddha and the Art of Intimacy: Weaving Sacred Connections of Love. ——— To Bless in Challenging Times: A Season of Blessings.
Dr. Fred Luskin, Forgive for Love: The Missing Ingredient for a Healthy and Lasting Relationship.
Joseph Marshall III, Walking with Grandfather: The Wisdom of Lakota Elders.
Thomas Moore, Care of the Soul, Twenty-fifth Anniversary Edition: A Guide for Cultivating Depth and Sacredness in Everyday Life.
Mark Nepo, The Book of Awakening: Having the Life You Want by Being Present to the Life You Have.
John O’Donohue, Anam Cara: A Book of Celtic Wisdom. ———To Bless the Space Between Us: A Collection of Invocations and Blessings. (CD)Mary
Oliver, New and Selected Poems, Volume One. ——— New and Selected Poems, Volume Two. ——— Devotions: The Selected Poems of Mary Oliver.
Lewis Richmond, Aging as a Spiritual Practice: A Contemplative Guide to Growing Older and Wiser.
Sogyal Rinpoche, The Tibetan Book of Living and Dying.
Zalman Schachter-Shalomi and Ronald S. Miller, From Age-Ing to Sage-Ing: A Revolutionary Approach to Growing Older.Spirituality & Practice. “Elder Spirituality Project,” www.spiritualityandpractice.com/projects/elder-spirituality/websites-organizations.David
Whyte, David Whyte: Essentials. Robert J. Wicks, The Tao of Ordinariness: Humility and Simplicity in a Narcissistic Age.
Terry Tempest Williams, Erosion: Essays of Undoing. ———Refuge: An Unnatural History of Family and Place.